Internal Reference Number: FOI_8689
Date Request Received: 04/06/2025 00:00:00
Date Request Replied To: 21/07/2025 00:00:00
This response was sent via: By Email
Request Summary: Dravet syndrome and Lennox-Gastaut syndrome
Request Category: Companies
| Question Number 1: 1. The number of unique patients with a recorded diagnosis of Dravet syndrome in 2024-2025. Likely coded as ICD-10 code G40.3 or SNOMED code of 230437002, ideally separated by month. a. Patient numbers segmented by age: i. 0-3 years old ii. 4-8 years old iii. 9-18 years old iv. 18 years+ | |
| Answer To Question 1: Please see our response to this FOI attached. To accompany this answer to question 1 please also see the documents listed below:  FOI_8689 - Dravet syndrome and Lennox-Gastaut syndrome - FOR ISSUE v1.xlsx | |
| Question Number 2: The number of unique patients with a recorded diagnosis of Lennox-Gastaut syndrome in 2024-2025. Likely coded as ICD-10 code G40.4 or SNOMED code of 230418006, ideally separated by month. a. Patient numbers segmented by age: i. 0-3 years old ii. 4-8 years old iii. 9-18 years old iv. 18 years+ | |
| Answer To Question 2: Please see our response to this FOI attached. | |
| Question Number 3: The number of unique patients who have been treated with fenfluramine in 2024-2025, separated by month a. Patient numbers segmented by age: i. 0-3 years old ii. 4-8 years old iii. 9-18 years old iv. 18 years+ b. For these patients, how many of them had a diagnosis of: i. Dravet Syndrome (ICD10 Code: G40.3) SCTID: 230437002 ii. Lennox-Gastaut syndrome (ICD10 Code: G40.4) SCTID: 230418006 c. For these patients, please provide a detailed breakdown of concurrent treatments. Specifically, list each additional treatment received alongside fenfluramine, and indicate the number of patients receiving each | |
| Answer To Question 3: Please see our response to this FOI attached. | |
| Question Number 4: The number of unique patients who have been treated with cannabidiol in 2024-2025, separated by month a. Patient numbers segmented by age: i. 0-3 years old ii. 4-8 years old iii. 9-18 years old iv. 18 years+ b. For these patients, how many of them had a diagnosis of: i. Dravet Syndrome (ICD10 Code: G40.3) SCTID: 230437002 ii. Lennox-Gastaut syndrome (ICD10 Code: G40.4) SCTID: 230418006 c. For these patients, please provide a detailed breakdown of concurrent treatments. Specifically, list each additional treatment received alongside cannabidiol, and indicate the number of patients receiving each | |
| Answer To Question 4: Please see our response to this FOI attached. | |
| Question Number 5: The number of unique patients who have been treated with cenobamate in 2024-2025, separated by month a. Patient numbers segmented by age: i. 0-3 years old ii. 4-8 years old iii. 9-18 years old iv. 18 years+ b. For these patients, how many of them had a diagnosis of: i. Dravet Syndrome (ICD10 Code: G40.3) SCTID: 230437002 ii. Lennox-Gastaut syndrome (ICD10 Code: G40.4) SCTID: 230418006 c. For these patients, please provide a detailed breakdown of concurrent treatments. Specifically, list each additional treatment received alongside cenobamate, and indicate the number of patients receiving each | |
| Answer To Question 5: Please see our response to this FOI attached. | |
| Question Number 6: The number of unique patients who have been treated with rufinamide in 2024-2025, separated by month a. Patient numbers segmented by age: i. 0-3 years old ii. 4-8 years old iii. 9-18 years old iv. 18 years+ b. For these patients, how many of them had a diagnosis of: i. Dravet Syndrome (ICD10 Code: G40.3) SCTID: 230437002 ii. Lennox-Gastaut syndrome (ICD10 Code: G40.4) SCTID: 230418006 c. For these patients, please provide a detailed breakdown of concurrent treatments. Specifically, list each additional treatment received alongside rufinamide, and indicate the number of patients receiving each | |
| Answer To Question 6: Please see our response to this FOI attached. | |
| Question Number 7: The number of unique patients who have been treated with stiripentol in 2024-2025, separated by month a. Patient numbers segmented by age: i. 0-3 years old ii. 4-8 years old iii. 9-18 years old iv. 18 years+ b. For these patients, how many of them had a diagnosis of: i. Dravet Syndrome (ICD10 Code: G40.3) SCTID: 230437002 ii. Lennox-Gastaut syndrome (ICD10 Code: G40.4) SCTID: 230418006 c. For these patients, please provide a detailed breakdown of concurrent treatments. Specifically, list each additional treatment received alongside stiripentol, and indicate the number of patients receiving each | |
| Answer To Question 7: Please see our response to this FOI attached. | |
| Question Number 8: The number of unique patients who have been treated with clobazam in 2024-2025, separated by month a. Patient numbers segmented by age: i. 0-3 years old ii. 4-8 years old iii. 9-18 years old iv. 18 years+ b. For these patients, how many of them had a diagnosis of: i. Dravet Syndrome (ICD10 Code: G40.3) SCTID: 230437002 ii. Lennox-Gastaut syndrome (ICD10 Code: G40.4) SCTID: 230418006 c. For these patients, please provide a detailed breakdown of concurrent treatments. Specifically, list each additional treatment received alongside clobazam, and indicate the number of patients receiving each | |
| Answer To Question 8: Please see our response to this FOI attached. | |
| Question Number 9: The number of unique patients who have been treated with sodium valproate in 2024-2025, separated by month a. Patient numbers segmented by age: i. 0-3 years old ii. 4-8 years old iii. 9-18 years old iv. 18 years+ b. For these patients, how many of them had a diagnosis of: i. Dravet Syndrome (ICD10 Code: G40.3) SCTID: 230437002 ii. Lennox-Gastaut syndrome (ICD10 Code: G40.4) SCTID: 230418006 c. For these patients, please provide a detailed breakdown of concurrent treatments. Specifically, list each additional treatment received alongside sodium valproate, and indicate the number of patients receiving each | |
| Answer To Question 9: Please see our response to this FOI attached. | |
| Question Number 10: The number of unique patients who have been treated with levetiracetam in 2024-2025, separated by month a. Patient numbers segmented by age: i. 0-3 years old ii. 4-8 years old iii. 9-18 years old iv. 18 years+ b. For these patients, how many of them had a diagnosis of: i. Dravet Syndrome (ICD10 Code: G40.3) SCTID: 230437002 ii. Lennox-Gastaut syndrome (ICD10 Code: G40.4) SCTID: 230418006 c. For these patients, please provide a detailed breakdown of concurrent treatments. Specifically, list each additional treatment received alongside levetiracetam, and indicate the number of patients receiving each | |
| Answer To Question 10: Please see our response to this FOI attached. | |
| Question Number 11: The number of unique patients who have been treated with topiramate in 2024-2025, separated by month a. Patient numbers segmented by age: i. 0-3 years old ii. 4-8 years old iii. 9-18 years old iv. 18 years+ b. For these patients, how many of them had a diagnosis of: i. Dravet Syndrome (ICD10 Code: G40.3) SCTID: 230437002 ii. Lennox-Gastaut syndrome (ICD10 Code: G40.4) SCTID: 230418006 c. For these patients, please provide a detailed breakdown of concurrent treatments. Specifically, list each additional treatment received alongside topiramate, and indicate the number of patients receiving each | |
| Answer To Question 11: Please see our response to this FOI attached. | |
| Question Number 12: The number of unique patients who have been treated with lamotrigine in 2024-2025, separated by month a. Patient numbers segmented by age: i. 0-3 years old ii. 4-8 years old iii. 9-18 years old iv. 18 years+ b. For these patients, how many of them had a diagnosis of: i. Dravet Syndrome (ICD10 Code: G40.3) SCTID: 230437002 ii. Lennox-Gastaut syndrome (ICD10 Code: G40.4) SCTID: 230418006 c. For these patients, please provide a detailed breakdown of concurrent treatments. Specifically, list each additional treatment received alongside lamotrigine, and indicate the number of patients receiving each | |
| Answer To Question 12: Please see our response to this FOI attached. | |
| Please see Attachments: | |
| To return to the list of all the FOI requests please click here | |
Our staff at 91影视 District Hospital have long been well regarded for the quality of care and treatment they provide for our patients and for their innovation, commitment and professionalism. This has been recognised in a wide range of achievements and it is reflected in our award of NHS Foundation Trust status. This is afforded to hospitals that provide the highest standards of care.
